“I laid there in hospital on total parenteral nutrition (TPN). I dreamed about escaping; pulling out the IVs and walking out of the hospital…”

KATHLEEN, SBS-IF PATIENT

QUALITY OF LIFE

Short bowel syndrome with intestinal failure (SBS-IF) is associated with a substantial burden for both patients and their loved ones. The condition can interfere with quality of life in multiple ways, causing patients to experience:1–4

  • Inability to work or keep a job
  • Fatigue and weakness
  • Interrupted sleep
  • Feeling like a burden on others
  • Depression
  • Reduced sexual drive and function
  • Disruption in travelling and leisure activities
  • Incapacity to have a social life

Living on permanent parenteral support can be physically and emotionally draining for SBS-IF patients, not just due to the symptoms caused by the disease, but also due to the inability to live a normal life.3,4

Studies have shown that the quality of life profile in SBS-IF patients is low and comparable to that of other chronically ill patients requiring:3

DIALYSIS

CHEMOTHERAPY

LIVER TRANSPLANTATION

Date of preparation: May 2020 C-ANPROM/INT//7387