QUALITY OF LIFE
Short bowel syndrome with intestinal failure (SBS-IF) is associated with a substantial burden for both patients and their loved ones. The condition can interfere with quality of life in multiple ways, causing patients to experience:1–4
- Inability to work or keep a job
- Fatigue and weakness
- Interrupted sleep
- Feeling like a burden on others
- Reduced sexual drive and function
- Disruption in travelling and leisure activities
- Incapacity to have a social life
Living on permanent parenteral support can be physically and emotionally draining for SBS-IF patients, not just due to the symptoms caused by the disease, but also due to the inability to live a normal life.3,4
Studies have shown that the quality of life profile in SBS-IF patients is low and comparable to that of other chronically ill patients requiring:3
- Jeppesen PB. J Parenter Enteral Nutr. 2014;38(1 Suppl):8S–13S.
- Hofstetter S, et al. Curr Med Res Opin. 2013;29(5):495–504.
- Smith CE. J Parenter Enteral Nutr. 1993;17(6):501–6.
- Kelly DG, et al. J Parenter Enteral Nutr. 2014;38(4):427–37.